Posted October 21, 2021 by Philippa Flemming Digital and social media

[VIDEO] Involving the patient from protocol to publication in real-world evidence studies

In this webinar recorded in September 2021, a panel including Emma Bagshaw, Mark Larkin and Sam Llewellyn from Vitaccess and Fulvio Baggi, Director of The European Myasthenia Gravis Association, discussed the lifecycle of creating collaborative digital patient registries and taking them through to publications. The discussion was based on the MyRealWorld Myasthenia Gravis study, which was co-created with patient advocacy groups and key opinion leaders from 9 countries.